Epidermolysis Bullosa or EB is a group of genetic disorders characterized by fragile skin and chronic, painful wounds and blisters that are caused by even the slightest irritation of normal day to day activities.The disease affects people of both genders and every ethnicity. As many as 500,000 people worldwide suffer from some form of EB.
Less than 200,000 Americans are affected by EB. Common occurrences in severe forms of EB include open wounds, disfiguring scars, musculoskeletaldeformities causing restricted function, internal and external blistering, malnutrition, and deterioration of the eyes and teeth. EB is often disabling and life-threatening.
The disorder can require daily wound care similar tothat given to acute burn patients. Currently, there is no cure for EB. "National Epidermolysis Bullosa Awareness Week" is set to begin in New York on October 25th, with the "Walk a Mile in My Shoes" relay to California. To learn more about this disorder and the Walk a Mile in My Shoes Relay
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